I thought I would continue from last weeks post regarding Disability Living Allowance for children or DLA and just explain what happens when your child reaches the age of 16. It's ok, not to scary but it does involve re applying for PIP as DLA is not automatically transferred over. This can cause a bit of stress to people leaving them feeling very uncertain about what happens in the future for their young person.
PIP is a benefit for people with disabilities and is available to that person whether in work or education. It is not means tested and it can be awarded to those between the ages of 16 and 64 even if they are in receipt of other benefits so it doesn't matter how much savings you have it is there to help with care and and to get around.
The application process starts with a brief phone call in which you talk to someone about basic details and if the person with the disability requires an appointee. This person will handle any finances and tasks that the person with the disability is unable to do. After that a paper form will be sent out which needs to be completed and then if necessary there may be a request to attend a face to face assessment. The decision will be made after all the information has been collected and although there have been delays in applications the DWP do intend letting you know their decision within three months.
It is very similar to DLA when applying, there is a care component and a mobility so there are two different payments as with DLA. The form requests information regarding how much help is required with medication, feeding and drinking, washing, dressing, toileting, going out, communication, interaction with people, travel and managing finances. I thought it was a much easier form to film in compared to the DLA. It does take into consideration a wide range of disabilities including the difficulties people have on the autism spectrum.
There is a really good fact sheet available on the NAS website with lots of information about PIP, an easy ready guide which the government has produced, and details how to claim for it too. Just follow the link here:
It can seem like a minefield sometimes and I know this from experience. Forms are not my favourite thing neither is talking on the phone sometimes but I can honestly say these people are there to help. There are some people who haven't had great experience with this process but all I can suggest is getting as much help and advice as possible. Talk to other parents, find a support group or contact your local authority as there are people who can help. Please don't worry and try to cope on your own.
If you do struggle, contact your local NAS branch (details available at
www.autism.org.uk). If you are in the Derby area contact the Derby Branch through Facebook or by email at firstname.lastname@example.org
I hope this helps, thank you for reading and I will be back for Pass the Remote tomorrow, until then take care.
Every Saturday will be about Autism, family and life.