My post today is one of those thinky doodly type of posts, great description that. To be honest I didn't know what to write and I was trying to come up with some great Autism info for you all but failed miserably. I will find some inspiration but what I felt I needed to do was probably share some things that I have on my mind at the moment if that's ok.
It's nothing serious and I'm not particularly down about anything, well ok I might have the post Christmas blues a bit which sounds a bit weird as I didn't really get into Christmas all that much. I think though that it's the time where there has been a massive shift in routine and we now have to move away from the chocolate, oh sorry I mean the calm of the holidays and get back into the hustle and bustle of regular life again.
For some that is so easy, for me I find it kind of hard shifting from holidays to regular weeks, then just as I'm happy in my regular routine, we have a break and I have to restart again. So I am at that stage but also thinking what the year has install for me as a parent of a gorgeous autistic adult. He is blooming gorgeous and I love him to bits.
I have the EHCP meeting later this month, oh I know we all love that one eh? Mr T's college are really good though so this has so far been an ok experience but now we face a bit of uncertainty. I know I just need to have a good chat with the college about his future, but at the moment we don't have any plans for where he moves onto in September. That's always a big worry isn't it fellow parents? Which school? Which college? It's still just a hard when our children become adults.
I will take time, take in advice and sort it, I always do but it always seems as though we as parents nail one thing and think we can then relax before another thing pops up. This is when it's important to stress that although our youngsters don't have a visible physical disability there is a lot the people don't see or realise what goes on.
It's a bit like a massive blockbuster movie, when you see it on the big screen it looks amazing and just so real but we never think of the work that goes into producing that movie. The behind the scenes technical stuff, hair, make up, scenery, locations, it all has to come together and aim to be successful. That movie is also usually filmed in different orders so sometimes the final scene can be filmed before the opening scenes, that sends my autistic brain a bit into a mish mash I can tell you. I would have to film in the right order as a director, good job I'm not one really. My point is though that this is what our lives are like in the autistic world, there's a lot of planning for something very simple to come together and be a successful such as a deciding on a school place.
Then we have to deal with the sequels.....Autism - The Meltdown, EHCP Part 2,3,4,5,6, PIP - the Renewal and Diagnosis Another Day. It never ends, but we are all here for each other and for saying I didn't know what to write today I think I 've done alright. The thing is now I've shared my thoughts with you I feel so much better. I am now at that 'bring it on' stage. Ready for autistic parent action......just like Bruce Willis in Die Hard, although I won't fire any ammunition but I will stick to my guns.
Thank you so much for reading today, I really appreciate being able to air my thoughts. Please do pop back tomorrow for Pass the Remote Sunday but for now.......
Your comment will be posted after it is approved.
Leave a Reply.
Every Saturday will be about Autism, family and life.